When my disease nearly destroyed me in 2009, my doctors thought I'd be lucky to regain 80 percent of my cognitive abilities. When I was at my sickest, I couldn't read or write. I could barely walk on my own or groom myself. The disease felled me physically and mentally - robbing me, briefly but intensely, of my wits, my sanity, my memory, my self.
For me, I think that there's a lot missing from the recovery or the post-diagnosis side of treating patients. Once the diagnosis is made, I feel that care drops off tremendously, even though it is precisely the time that a patient needs help the most, even if they are not verbalizing it.
We separate problems with the brain into neurological and psychiatric, and it's because it's stigmatised still. Mental illness is still stigmatised. Imagine if we treated people with cancer like that. Just because your personality changes and your behaviour changes, all of a sudden you are put in a different category.